Onesie Day at Nescot to raise awareness of rare condition

Jan 16, 2014

Onesie Day at Nescot to raise awareness of rare condition

An Osteopathy student is organising a fundraising day at Nescot in aid of charity.

Abi Shrapnell is encouraging staff and students at the college to wear a onesie, zebra print or black and white as part of Rare Diseases Day on Thursday February 27.

Abi is aiming to raise £600 for Ehlers-Danlos Support UK, a charity that supports people with the genetic connective tissue condition Ehlers-Danlos Syndrome (EDS).

Students will be collecting sponsorship in return for dressing up, and Abi is asking for donations of prizes, or cakes that can be sold to raise money.

EDS is a group of inherited conditions that affect collagen proteins in the body. Symptoms include stretchy skin, loose joints and fragile body tissue.

Ehlers-Danlos Support UK aims to educate the medical community about EDS. The charity funds research projects and produces literature, DVDs and merchandise to increase understanding of how to manage the condition, and runs events and conferences.

The charity uses zebra-print in its logo because the term ‘zebra’ is used in medicine to refer to a rare disease or condition, with doctors taught that the simplest explanation is usually correct in order to avoid patients being misdiagnosed.

To sponsor Abi, visit her JustGiving page, and to donate prizes or cakes or to collect sponsorship forms contact the Nescot marketing office on 020 8394 3343 or

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